And, at this point, every little bit counts. We had to go up to the VA Hospital in Denver yesterday to meet with the dietitians and an MD to assess if I needed Total Parenteral Nutrition (TPN) and if it was safe for me. So I go walking in there with my TPN backpack in my hand and showed them that TPN is, indeed, safe since I appeared to be walking around and functional. The things those people told me! Allegedly the VA Clinic in the Springs had told them I had some sort of feeding tube, which I do not. I showed them the operative reports that showed the full extent of this cancer, as well as the photos the surgeon took a year ago. I explained that a Nasogastric (NG) tube was not for long term, a feeding tube in my stomach was not doable because it is “plastered to my retroperitoneum and could not be brought up to the abdominal wall.” No feeding tube going in that stomach! And then there is also the small intestine … but the report said, “the entire surface of the small intestine was covered in tumor.” No feeding tube in the small intestine. So what options are left? TPN! They agreed to cover the cost and that this was the appropriate method of nourishment for me. Duh. I had only told them that on the phone about five times … but I guess if they want to pay us $60 for mileage to drive to Denver, no worries. The only downside is that this IS a government-run healthcare system, so it is a bit boggy and can take anywhere from a week to 3 months to come through. I arched an eyebrow and asked them if they were hoping I wouldn’t live long enough for them to pay … they agreed to expedite.
Another small triumph was that I got through the night, last night, with no severe pain or vomiting. WAHOOOOOOOOOOOO! That was such a relief. Gotta admit I really want more of that. So I will continue to let my TPN do all my nourishing for now. I am only eating when my stomach gets painfully empty and, even then, I only eat enough to take the pain away … just a few bites of something easily digestible. And, for the first time since starting my TPN, I did not gain any weight or size overnight. So perhaps my body will stabilize with the TPN and stop all this fluid creation. I am also working on bringing Kris Kraft, energy healer, out to work on me like he did last year. Chemo again on Thursday … die you bastards, DIE!